I’ve learned a lot in the 2.5 years since my son’s Celiac Disease diagnosis and I have no doubt I will continue learning every day! But since it's Celiac Disease Awareness Month, I wanted to share some of the big things as a reminder for those going through it and for those with newly diagnosed kids.
While it is their diagnosis, right now you carry a lot of the weight of it. It’s okay to mourn the loss of experiences and foods your child may never get to enjoy. You are the one researching food, looking at labels, buying the food, preparing the food... it's a LOT!
Teaching your child to be their own advocate is the best tool you can give them. Remember, you won’t always be there to do it for them! Show them how to safely order food at a restaurant, guide them through reading an ingredient label, tell them how to politely turn down food they don't feel comfortable eating, and how to ask if something is safe for them to eat.
Friends and family that make sure your child is always safe and included mean the world. Keep those people close!! There will be MANY times that you child is left out because they can't participate with others. Those that ask what they can do and want to know how to keep your child safe are friends for a lifetime.
While I experience many parts of Celiac Disease through my child, I don’t know what it’s like to actually live with it myself. I know this isn’t true for all families but it makes me always wonder if I am doing everything I can for him.
My child can live a full live with Celiac Disease! Set them up for success by surrounding them with support and equipping them with the tools they need. They are incredible and can do amazing things in the world!
I know this isn’t everything so share share your own thoughts below!!